The PANS PANDAS Research Working Group was formed to expedite high quality UK research into these conditions.

One of the key initiatives of the PANS PANDAS Research Working Group has been to submit applications to the British Paediatric Surveillance Unit (BPSU) and the Child and Adolescent Psychiatry Surveillance Service (CAPSS) to better understand the incidence of PANS and PANDAS in the UK.

Subsequent research will centre around early phase treatment and will map out service development including acute presentations, the refractory group of patients and the relapsing group of patients. The intention is that this should lead into early intervention and antibiotic studies.