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Welcome

The PANS PANDAS Steering Group (PPSG) is a multidisciplinary group convened to address the variation in care available to children and young people presenting with symptoms of PANS and PANDAS in the UK.*

The PANS PANDAS Steering Group oversees four sub-working groups:

PANS (Paediatric Acute-onset Neuropsychiatric Syndrome) and PANDAS (Paediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections) are conditions which can severely compromise children and young people’s access to education and normal quality of life. Many children currently face difficulties in accessing local NHS care for PANS and PANDAS.

The PPSG is committed to working collaboratively with colleagues and families towards improved care, educational support and outcomes for all those affected by these conditions in the UK.

Supported by NHS England and the Department of Health and Social Care, the PPSG has representation from the following organisations:

Supported by NHS England and the Department of Health and Social Care, the PPSG has representation from these organisations

*The information on this website is intended for all healthcare professionals involved in the assessment, diagnosis, management and support of children and young people presenting with acute-onset neuropsychiatric symptoms. This includes primary care practitioners, allied health professionals and relevant specialists in secondary and tertiary care.

Glossary

  • ADHD
    Attention Deficit Hyperactivity Disorder
  • AE
    Auto-immune Encephalitis
  • ARFID
    Avoidant Restrictive Food Intake Disorder
  • ASD
    Autism Spectrum Disorder
  • CAMHS
    Child and Adolescent Mental Health Service
  • CBT
    Cognitive Behavioural Therapy
  • Dysgraphia
    difficulty writing by hand
  • EHCP
    Education, Health and Care Plan
  • Emotional Lability
    Rapid, and dramatic changes in mood (for example uncontrollable laughter to crying)
  • Enuresis
    wetting
  • GAS
    Group A Streptococcal infection
  • NHSE
    NHS England
  • NICE
    National Institute for Health and Care Excellence
  • OCD
    Obsessive Compulsive Disorder
  • PP
    PANS PANDAS
  • PPUK
    PANS PANDAS UK
  • PPN
    PANS Physicians Network
  • PPSG
    PANS PANDAS Steering Group
  • SENCo
    Special Educational Needs Coordinator
  • SIGN
    Scottish Intercollegiate Guidelines Network to the glossary
  • Tic
    Sudden repetitive movement (motor tic) or sound (vocal tic) which is difficult or impossible to control